the life of a photographer with ehlers danlos syndrome

from the age of 12 i knew i was going to do something creative -art/photography

from the age of 16 when i was diagnosed i knew i was going to be in pain for the rest of my life

i cant help but feel like if these ages were swapped around, i would have chosen a different career.

its hard but, its my passion, unfortunately, when living with a hereditary, life long, degenerative illness such as EDS, i have to make looking after myself a passion too.

i adore music, i shot a rock band the other night, i was on my feet from 4pm till 1am, my ankles swollen, my wrist cracking every which way and popping out-of-place, my mental state becoming weaker and lower with every image i took, but that doesn’t take away from the feeling of pride i get when i capture the perfect image and i know i’ve made my clients happy and i receive the figurative and literal reward i deserve.

i wont let my illness stop me from getting where i want to get in life. but it gets so hard at times..

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